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1

From Privacy to Data Protection in the EU: Implications for Big Data Health Research

Mostert, Menno, Bredenoord, Annelien L., van der Slootb, Bart, van Delden, Johannes J.M.

Journal:

European Journal of Health Law

Year:

2017

Language:

english

File:

PDF, 506 KB

english, 2017

2

Revised CIOMS International Ethical Guidelines for Health-Related Research Involving Humans

van Delden, Johannes J. M., van der Graaf, Rieke

Journal:

JAMA The Journal of the American Medical Association

Year:

2017

Language:

english

File:

PDF, 50 KB

english, 2017

3

Decision theory and the evaluation of risks and benefits of clinical trials

Rosemarie D.C. Bernabe, Ghislaine J.M.W. van Thiel, Jan A.M. Raaijmakers, Johannes J.M. van Delden

Journal:

Drug Discovery Today

Year:

2012

Language:

english

File:

PDF, 220 KB

english, 2012

4

Toward a “Post-Posthuman Dignity Area” in Evaluating Emerging Enhancement Technologies

Bredenoord, Annelien L., Graaf, Rieke van der, van Delden, Johannes J. M.

Journal:

American Journal of Bioethics

Year:

2010

Language:

english

File:

PDF, 74 KB

english, 2010

5

Reporting of euthanasia and physician-assisted suicide in the Netherlands: descriptive study

Hilde Buiting, Johannes van Delden, Bregje Onwuteaka-Philpsen, Judith Rietjens, Mette Rurup, Donald van Tol, Joseph Gevers, Paul van der Maas, Agnes van der Heide

Journal:

BMC Medical Ethics

Year:

2009

Language:

english

File:

PDF, 529 KB

english, 2009

6

Ethical implications of regenerative medicine in orthopedics: an empirical study with surgeons and scientists in the field

Niemansburg, Sophie L., van Delden, Johannes J.M., Öner, F. Cumhur, Dhert, Wouter J.A., Bredenoord, Annelien L.

Journal:

The Spine Journal

Year:

2014

Language:

english

File:

PDF, 214 KB

english, 2014

7

Justification of exclusion criteria was underreported in a review of cardiovascular trials

Schmidt, Amand F., Groenwold, Rolf H.H., van Delden, Johannes J.M., van der Does, Yuri, Klungel, Olaf H., Roes, Kit C.B., Hoes, Arno W., van der Graaf, Rieke

Journal:

Journal of Clinical Epidemiology

Year:

2014

Language:

english

File:

PDF, 751 KB

english, 2014

8

Opinions about euthanasia and advanced dementia: a qualitative study among Dutch physicians and members of the general public

Kouwenhoven, Pauline SC, Raijmakers, Natasja JH, van Delden, Johannes JM, Rietjens, Judith AC, van Tol, Donald G, van de Vathorst, Suzanne, de Graeff, Nienke, Weyers, Heleen AM, van der Heide, Agnes,

Journal:

BMC Medical Ethics

Year:

2015

Language:

english

File:

PDF, 255 KB

english, 2015

9

The Need to Explicate the Ethical Evaluation Tools to Avoid Ethical Inflation

Bernabe, Rosemarie D. C., van Thiel, Ghislaine J. M. W., Raaijmakers, Jan A. M., van Delden, Johannes J. M.

Journal:

American Journal of Bioethics

Year:

2009

Language:

english

File:

PDF, 57 KB

english, 2009

10

The ethics of cluster-randomized trials requires further evaluation: a refinement of the Ottawa Statement

van der Graaf, Rieke, Koffijberg, Hendrik, Grobbee, Diederick E., de Hoop, Esther, Moons, Karel G.M., van Thiel, Ghislaine J.M.W., de Wit, G. Ardine, van Delden, Johannes J.M.

Journal:

Journal of Clinical Epidemiology

Year:

2015

Language:

english

File:

PDF, 173 KB

english, 2015

11

Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach

Mostert, Menno, Bredenoord, Annelien L, Biesaart, Monique C I H, van Delden, Johannes J M

Journal:

European Journal of Human Genetics

Year:

2015

Language:

english

File:

PDF, 255 KB

english, 2015

12

What do international ethics guidelines say in terms of the scope of medical research ethics?

Bernabe, Rosemarie D. L. C., van Thiel, Ghislaine J. M. W., van Delden, Johannes J. M.

Journal:

BMC Medical Ethics

Year:

2016

Language:

english

File:

PDF, 452 KB

english, 2016

13

Parental experiences with a paediatric palliative care team: A qualitative study

Verberne, Lisa M, Schouten-van Meeteren, Antoinette YN, Bosman, Diederik K, Colenbrander, Derk A, Jagt, Charissa T, Grootenhuis, Martha A, van Delden, Johannes JM, Kars, Marijke C

Journal:

Palliative Medicine

Year:

2017

Language:

english

File:

PDF, 360 KB

english, 2017

14

End-of-Life Decisions in the Netherlands over 25 Years

van der Heide, Agnes, van Delden, Johannes J.M., Onwuteaka-Philipsen, Bregje D.

Journal:

New England Journal of Medicine

Year:

2017

Language:

english

File:

PDF, 75 KB

english, 2017

15

Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care

Rietjens, Judith A C, Sudore, Rebecca L, Connolly, Michael, van Delden, Johannes J, Drickamer, Margaret A, Droger, Mirjam, van der Heide, Agnes, Heyland, Daren K, Houttekier, Dirk, Janssen, Daisy J A,

Journal:

The Lancet Oncology

Year:

2017

Language:

english

File:

PDF, 383 KB

english, 2017

16

Barriers and facilitators to the implementation of a paediatric palliative care team

Verberne, Lisa M., Kars, Marijke C., Schepers, Sasja A., Schouten-van Meeteren, Antoinette Y. N., Grootenhuis, Martha A., van Delden, Johannes J. M.

Journal:

BMC Palliative Care

Year:

2018

Language:

english

File:

PDF, 382 KB

english, 2018

17

Dementia and advance directives: some empirical and normative concerns

Jongsma, Karin R, Kars, Marijke C, van Delden, Johannes J M

Journal:

Journal of Medical Ethics

Year:

2018

Language:

english

File:

PDF, 146 KB

english, 2018

18

Developments in euthanasia practice in the Netherlands: Balancing professional responsibility and the patient’s autonomy

Kouwenhoven, Pauline S. C., van Thiel, Ghislaine J. M. W., van der Heide, Agnes, Rietjens, Judith A. C., van Delden, Johannes J. M.

Journal:

European Journal of General Practice

Year:

2018

Language:

english

File:

PDF, 759 KB

english, 2018

19

Interventions Guiding Advance Care Planning Conversations: A Systematic Review

Fahner, Jurrianne C., Beunders, Alexandra J.M., van der Heide, Agnes, Rietjens, Judith A.C., Vanderschuren, Maaike M., van Delden, Johannes J.M., Kars, Marijke C.

Journal:

Journal of the American Medical Directors Association

Year:

2018

Language:

english

File:

PDF, 744 KB

english, 2018

20

Responsible data sharing in international health research: a systematic review of principles and norms

Kalkman, Shona, Mostert, Menno, Gerlinger, Christoph, van Delden, Johannes J. M., van Thiel, Ghislaine J. M. W.

Journal:

BMC Medical Ethics

Year:

2019

Language:

english

File:

PDF, 614 KB

english, 2019

21

Public and physicians’ support for euthanasia in people suffering from psychiatric disorders: a cross-sectional survey study

Evenblij, Kirsten, Pasman, H. Roeline W., van der Heide, Agnes, van Delden, Johannes J. M., Onwuteaka-Philipsen, Bregje D.

Journal:

BMC Medical Ethics

Year:

2019

Language:

english

File:

PDF, 702 KB

english, 2019

22

Towards advance care planning in pediatrics: a qualitative study on envisioning the future as parents of a seriously ill child

Fahner, Jurrianne C., ThÃ¶lking, Thessa W., Rietjens, Judith A. C., van der Heide, Agnes, van Delden, Johannes J. M., Kars, Marijke C.

Journal:

European Journal of Pediatrics

Year:

2020

Language:

english

File:

PDF, 268 KB

english, 2020

23

Should we deny ICU admission to the elderly? Ethical considerations in times of COVID-19

Haas, Lenneke E. M., de Lange, Dylan W., van Dijk, Diederik, van Delden, Johannes J. M.

Journal:

Year:

2020

File:

PDF, 239 KB

2020

24

Photochemical and Thermal Isomerization Processes of a Chiral Auxiliary Based Donor–Acceptor Substituted Chiroptical Molecular Switch: Convergent Synthesis, Improved Resolution and Switching Properties

Richard A. van Delden, Johannes H. Hurenkamp, Ben L. Feringa

Journal:

Chemistry - A European Journal

Year:

2003

Language:

english

File:

PDF, 256 KB

english, 2003

25

Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

Annelien L. Bredenoord, N. Charlotte Onland-Moret, Johannes J.M. Van Delden

Journal:

Year:

2011

Language:

english

File:

PDF, 141 KB

english, 2011

26

Factors influencing parental readiness to let their child with cancer die

Marijke C. Kars, Mieke H.F. Grypdonck, Auke Beishuizen, Esther M.M. Meijer-van den Bergh, Johannes J.M. van Delden

Journal:

Pediatric Blood & Cancer

Year:

2010

Language:

english

File:

PDF, 163 KB

english, 2010

27

Continue diepe sedatie bij patiënten in de laatste levensfase

Judith Rietjens, Johannes van Delden, Bregje Onwuteaka-Philipsen, Hilde Buiting, Paul van der Maas, Agnes van der Heide

Journal:

Huisarts en wetenschap

Year:

2008

Language:

dutch

File:

PDF, 97 KB

dutch, 2008

28

Parental experience at the end-of-life in children with cancer: ‘preservation’ and ‘letting go’ in relation to loss

Marijke C. Kars, Mieke H. F. Grypdonck, Maria C. de Korte-Verhoef, Willem A. Kamps, Esther M. M. Meijer-van den Bergh, Marian A. Verkerk, Johannes J. M. van Delden

Journal:

Supportive Care in Cancer

Year:

2011

Language:

english

File:

PDF, 160 KB

english, 2011

29

Une mort tres douce

Margje H. Haverkamp, Johannes J. M. van Delden

Journal:

Medicine, Health Care and Philosophy

Year:

2006

Language:

english

File:

PDF, 220 KB

english, 2006

30

Filial obligations to elderly parents: a duty to care?

Maria C. Stuifbergen, Johannes J. M. Van Delden

Journal:

Medicine, Health Care and Philosophy

Year:

2011

Language:

english

File:

PDF, 170 KB

english, 2011

31

Two Decades of Research on Euthanasia from the Netherlands. What Have We Learnt and What Questions Remain?

Judith A. C. Rietjens, Paul J. van der Maas, Bregje D. Onwuteaka-Philipsen, Johannes J. M. van Delden, Agnes van der Heide

Journal:

Journal of Bioethical Inquiry

Year:

2009

Language:

english

File:

PDF, 220 KB

english, 2009

32

Being there: parenting the child with acute lymphoblastic leukaemia

Marijke C Kars, Mia SH Duijnstee, Aart Pool, Johannes JM Van Delden, Mieke HF Grypdonck

Journal:

Journal of Clinical Nursing

Year:

2008

Language:

english

File:

PDF, 150 KB

english, 2008

33

Reports from The Netherlands. DANCES WITH DATA

JOHANNES J. M. VAN DELDEN, LOES PIJNENBORG, PAUL J. VAN DER MAAS

Journal:

Year:

1993

Language:

english

File:

PDF, 399 KB

english, 1993

34

Tailor-Made Pharmacotherapy: Future Developments and Ethical Challenges in the Field of Pharmacogenomics

Johannes Van Delden, Ineke Bolt, Annemarie Kalis, Jeroen Derijks, Hubert Leufkens

Journal:

Year:

2004

Language:

english

File:

PDF, 81 KB

english, 2004

35

CLARIFYING APPEALS TO DIGNITY IN MEDICAL ETHICS FROM AN HISTORICAL PERSPECTIVE

RIEKE VAN DER GRAAF, JOHANNES JM VAN DELDEN

Journal:

Year:

2009

Language:

english

File:

PDF, 106 KB

english, 2009

36

End-of-Life Decision-Making in Canada: The Report by the Royal Society of Canada Expert Panel on End-of-Life Decision-Making

UDO SCHÜKLENK, JOHANNES J. M. VAN DELDEN, JOCELYN DOWNIE, SHEILA A. M. MCLEAN, ROSS UPSHUR, DANIEL WEINSTOCK

Journal:

Year:

2011

Language:

english

File:

PDF, 455 KB

english, 2011

37

ON USING PEOPLE MERELY AS A MEANS IN CLINICAL RESEARCH

RIEKE VAN DER GRAAF, JOHANNES J.M. VAN DELDEN

Journal:

Year:

2012

Language:

english

File:

PDF, 139 KB

english, 2012

38

Beliefs on Mandatory Influenza Vaccination of Health Care Workers in Nursing Homes: A Questionnaire Study from the Netherlands

Ingrid Looijmans-van den Akker, Badyr Marsaoui, Eelko Hak, Johannes J. M. Van Delden

Journal:

Journal of the American Geriatrics Society

Year:

2009

Language:

english

File:

PDF, 66 KB

english, 2009

39

UPTAKE OF INFLUENZA VACCINATION IN DUTCH NURSING HOME PERSONNEL FOLLOWING NATIONAL RECOMMENDATIONS

Ingrid Looijmans-van den Akker, Johannes J. M. Van Delden, Eelko Hak

Journal:

Journal of the American Geriatrics Society

Year:

2007

Language:

english

File:

PDF, 53 KB

english, 2007

40

Editorial: Prevention comes of age?

Luc G.A. Bonneux, Ben A. van Hout, Johannes J.M. van Delden, Diederick E. Grobbee

Journal:

European Journal of Epidemiology

Year:

2003

Language:

english

File:

PDF, 46 KB

english, 2003

41

Is informed consent necessary for randomized Phase IV ‘observational’ drug studies?

Rosemarie D.C. Bernabe, Ghislaine J.M.W. van Thiel, Jan A.M. Raaijmakers, Johannes J.M. van Delden

Journal:

Drug Discovery Today

Year:

2011

Language:

english

File:

PDF, 106 KB

english, 2011

42

Autonomy in an ascribed relationship: The case of adult children and elderly parents

Maria C. Stuifbergen, Pearl A. Dykstra, Katja N. Lanting, Johannes J.M. van Delden

Journal:

Journal of Aging Studies

Year:

2010

Language:

english

File:

PDF, 205 KB

english, 2010

43

Forgoing Artificial Nutrition or Hydration in Patients Nearing Death in Six European Countries

Hilde M. Buiting, Johannes J.M. van Delden, Judith A.C. Rietjens, Bregje D. Onwuteaka-Philipsen, Johan Bilsen, Susanne Fischer, Rurik Löfmark, Guido Miccinesi, Michael Norup, Agnes van der Heide

Journal:

Journal of Pain and Symptom Management

Year:

2007

Language:

english

File:

PDF, 120 KB

english, 2007

44

Re: Palliative Sedation: The Need for a Descriptive Definition

Judith A.C. Rietjens, Johannes J. van Delden, Luc Deliens, Agnes van der Heide

Journal:

Journal of Pain and Symptom Management

Year:

2009

Language:

english

File:

PDF, 50 KB

english, 2009

45

Continuous Palliative Sedation for Cancer and Noncancer Patients

Siebe J. Swart, Judith A.C. Rietjens, Lia van Zuylen, Wouter W.A. Zuurmond, Roberto S.G.M. Perez, Paul J. van der Maas, Johannes J.M. van Delden, Agnes van der Heide

Journal:

Journal of Pain and Symptom Management

Year:

2012

Language:

english

File:

PDF, 115 KB

english, 2012

46

Disclosure of individual genetic data to research participants: the debate reconsidered

Annelien L. Bredenoord, Hester Y. Kroes, Edwin Cuppen, Michael Parker, Johannes J.M. van Delden

Journal:

Trends in Genetics

Year:

2011

Language:

english

File:

PDF, 150 KB

english, 2011

47

A framework for the ethics review of education research

Jonneke I Eikelboom, Olle Th J ten Cate, Debbie Jaarsma, Janet A N Raat, Lambert Schuwirth, Johannes J M van Delden

Journal:

Medical Education

Year:

2012

Language:

english

File:

PDF, 55 KB

english, 2012

48

Determinants of successful implementation of population-based cancer screening programmes

Elsebeth Lynge, Sven Törnberg, Lawrence von Karsa, Nereo Segnan, Johannes J.M. van Delden

Journal:

European Journal of Cancer

Year:

2012

Language:

english

File:

PDF, 153 KB

english, 2012

49

Medical decision-making for seriously ill non-elderly and elderly patients

Astrid M. Vrakking, Agnes van der Heide, Johannes J.M. van Delden, Caspar W.N. Looman, Michelle H. Visser, Paul J. van der Maas

Journal:

Year:

2005

Language:

english

File:

PDF, 106 KB

english, 2005

50

Physicians' willingness to grant requests for assistance in dying for children: A study of hypothetical cases

Astrid M. Vrakking, Agnes van der Heide, Caspar W.N. Looman, Johannes J.M. van Delden, Bregje D. Onwuteaka-Philipsen, Paul J. van der Maas, Gerrit van der Wal

Journal:

The Journal of Pediatrics

Year:

2005

Language:

english

File:

PDF, 137 KB

english, 2005

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